Stills Never Slows

Dear Reader,

Since having the diagnosis of Adult-Onset Stills Disease, I have encountered many "unique" diagnosis and situations that include:

1) Inappropriate Sinus Tachycardia: Unknown reason(s) why my heart rate beats too fast.

2) EOE (eosinophilic esophagitis): There is no "on-paper direct correlation to Stills"; however physicians connected EOE to the tachycardia, for me anyways.

3) Neutrophilia: Stills causes my neutrophil level count to be high when looked at under a microscope.

4) Neurological problem vs. Orthopedic problem: And now, I went to the Emergency room with random chest pains thinking I was having a heart attack. No heart attack. However, my hand contorted and I have horrible neck and upper back pain. I figured it was time for a referral to neuro, starting there at least. We'll see.

I don't know. Sometimes my mind just goes blank at this point.

Have you ever experienced any of this?

I'm still trying my best to catch up on sleep. I feel exhausted..so without further adieu...

Warm Regards,

Lauren Meredith